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"James", a site about Parkinson's Disease
This web site is about Parkinson's Disease;
what it is, where you can get support, what you can do to fight its effects,
and how the Internet can help. It is a project of the Adrienne
Coles Memorial Trust.
If you are looking for information specifically about Parkinson's,
we have a section of information and links to many other sites. We also
have an area of more general medical information
and a section on the important topic of caring.
Major features of this site are A searchable archive
of the PARKINSN list, Brian Collins's Drug Management
information & tools, and Helen Rose's book "An old
age pensioner at 18". This site is based in the UK, and whilst most of the
content is international, we have an area for items of UK
interest.
We also host a number of European mailing lists from this site:
PARKLISTE (in French - the web site is hosted elsewhere),
PDUK (UK issues), NEDERPARK (in Dutch),
DEUPARK (in German), and BELGAPARK (for Belgians).
If you want to stay up to date with what's happening in the Parkinson's world,
but don't have the time to stay on the mailing lists, we suggest you join
PDNEWS, our announcement list. We monitor what's going on and send just
a few posts every week to the list.
We link to all the other Parkinson's sites that we know of, as each makes a
unique contribution to the Parkinson's Community on
the Internet. If we've missed one, please
let us know.
The Adrienne Coles Memorial Trust, is
a new Charitable Trust setup "...for the development of Parkinson's Disease
Information and related material on the Internet", and we hope to bring
you news of our activities soon.
As you would expect we have lots of tidbits on The
Internet and how it is being used to empower patients. The established
Parkinson's Disease organisations and related
bodies are starting to make their presence felt, which is encouraging.
We've got some resources we've used for Internet
Evangelism, although these are quite old - The Internet has happened, and
people rarely need to be convinced now!
We've come across some other interesting sites on
the web which we thought we would share. The whole
Charity/Non-profit area, as well as technology
for disabilities is getting quite interesting as well.
Information on this site has come from a variety of sources, if you have something
to contribute please email me. You
should read this disclaimer about this site.
In progress: I am working through all the links adding descriptions etc. The
first one I have done is items of UK interest and over
the coming months I will be working on the other areas. This may well lead to
changes in the layout of the site, as descriptions make the pages a lot bigger.
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This site is © Copyright The Adrienne Coles Memorial Trust 2000, 2001, 2002.
The Adrienne Coles Memorial Trust is a Registered Charity with Charity Commission for England & Wales, registration number 1084973.
For more information and suggestions email the webmaster.
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