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UK Interest
This section contains links to UK-based web sites, which may be of interest to
people with Parkinson's. I've tried to put some brief comments with each entry.
Please
let me know
of any sites you've found that I have missed.
We have a page all about the
PDS including links to the web sites of some local branches.
Parkinson's Disease
Brian Collins's work on Drug management
Brian is a Parkinsonian with a good insight into how PD drugs work for people
with Parkinsons. As well as writing extensively on the subject, he's also heavily
involved in his local PDS branch.
Helen Roses's Book "An Old Age Pensioner at 18"
Helen's book describes her experiences being diagnosed with Parkinson's at 18.
Well worth reading. (Also available in print from the PDS.)
Parkinson's Disease tutorial Queen Elizabeth Hospital, Birmingham
Part of the Department of Clinical Neurosciences Online Tutorials in Neurology, a
technical introduction to Parkinson's.
The UK Parkinson's Community on the Internet
Buy your books from Amazon and support the Adrienne Coles Memorial Trust
Use this link to buy your books from Amazon, and a small commission goes to the
Adrienne Coles Memorial Trust.
The SPRING Web site. SPRING
are the official research special interest group of the PDS.
The Adrienne Coles Memorial Trust
Promotes Parkinson's Disease information on the Internet
The Internet domain parkinsons.org.uk
What its there for, who holds it, etc.
The PDUK mailing list
A mailing list about PD in the UK
Chris Chapman, a young onset PWP, has
a web site describing his experiences
Other charities
Sarah Matheson Trust for Multiple System Atrophy
A UK based group for people with MSA
Consumer Health
Med Help International - "Virtual Medical Center for Patients"
Med Help International is dedicated to helping patients find the highest quality
medical information in the world today
MedInfo UK
Written by a GP, MedInfo aims to provide free and easy to understand medical
information and advice, such as you might get from your own doctor, on a number
of common and not so common conditions.
Patient information for the UK
UK-based patient information site, with sections for UK-specific items like GPs
and other parts of the NHS. Also links to a number of Patient information and
self-help group web sites.
Support-Group.com
"Support-Group.com allows people with health, personal, and relationship issues
to share their experiences through Bulletin Boards & Online Chat." Including
a list of support groups
althought the Parkinson's entry is a bit sparse.
RDS - Understanding Animal Research
in Medicine
RDS represents UK doctors, vets and scientists in the public debate about the
use of animals in medical research.
The Parkinson's Disease Society of the UK
PDS links
Our collection of web pages relating to the PDS
Charity issues
IT for charities
A UK resource on computers & IT for charities
The Charities Aid Foundation - "Charitynet"
CAF helps charities in the UK in a number of ways, with information, fundraising
services, etc.
The UK fundraising web site
All about charity fundraising in the UK
UK Charity Commission
The body which reglates Registered Charities in the UK (like the PDS)
General Disability Issues
Disability Net UK
"A worldwide disability news and information service" based in the UK
Herefordshire Centre for Independant Living
With links to many other independant living sites.
The British Council Of Disabled People
"The British Council of Disabled People (BCODP) was set up by disabled people in
1981 to promote our full equality and participation within society. We are an
umbrella organisation that represents some 136 disabled people's groups (April
1999) at the national level. These groups, controlled by disabled people, are
mostly local Coalitions working on local issues."
The Computability Centre
Will help with adapting computers for people with disabilities. Excellent
organisation.
UK Community Care
All about Community Care in the UK, with lots of links to related sites.
NHS & other bodies
Department of Health's National Research Register
The National Research Register (NRR) is a register of ongoing and recently
completed research projects funded by the United Kingdom's National Health
Service. The first release contains information on over 28,000 research projects,
as well as entries from the Medical Research Council's Clinical Trials Register,
and details on reviews in progress collected by the NHS Centre for Reviews and
Dissemination.
Institute of Health Services Management
For the people who run the NHS
NHS Direct
NHS People - free Internet for NHS Employess
A news release about a free Internet service for NHS employees
NHS (UK) Year Book - a directory of the NHS
From the database of over 200,000 personnel and 50,000 premises throughout the
NHS and private healthcare sector. The database contains information support
services companies, a Complementary Medicine directory as well as a nursing homes
directory
NHSnet IMPACT
NHSnet IMPACT is a group of technically literate and concerned GPs, (and other
NHS professionals) who also lead their PCGs working to see NHS networking
succeed.
The Weir Nursing Home
The Weir Nursing Home in Hereford specialises in Parkinson's Disease.
UK Medcines Control Agency (MCA)
The organisation that regulates medcines in the UK
Media
BBC News front page
The BBC's news web site
BBC Radio 4 - "Disability Zone"
Home page of the Radio 4 disability programmes with lots of in-depth factsheets
and investigations.
Media Info database
Large database of media sites on the web
Medical Information
A UK site of Nursing & Healthcare resources on the Internet
British Medical Journal
Online access to the prestigious medical journal, fully searchable. Generally,
these articles are meant for Doctors and other medical professionals, so they
will be very technical.
Cyber-Hospital UK - a resource for medical professionals
OMNI: Organising Medical Networked Information
A UK directory of high quality biomedical resources on the Internet. Over 4,000
entries including MEDLINE access. As this is aimed at medical professionals, the
sites listed are likely to be technical in nature.
"The Lancet" website
You have to subscribe to the printed version to get full access to this medical
journal. Articles aimed at medical professionals.
Misc.
Dr Alison Lee's personal page
Dr. Lee is a Senior Research Fellow currently involved in an 18-month year grant
investigating distortions of perceived space in Parkinson's disease, with Dr John
Harris at the Department of Psychology, University of Reading. The project is
sponsored by the Parkinson's Disease Society of the United Kingdom.
Mark Griffin, a PWP from Wales
Mark's personal site.
Motability website
Helping people with disabilities become more mobile by providing suitable
vehicules (can also arrange finance deals).
PPP Healthcare
The private healthcare provider.
SeniorsSearch UK
A search engine aimed at the over 50's. Unfortunately they make you put their
logo on your page before they will list you, which isn't something I am prepared
to do, so this site isn't listed. I would guess quite a few sites aren't listed
for the same reason, so their directory isn't going to be all that comprehensive.
What a silly policy.
The Hansard Society
The UK Government's "IT for all" initiative
Including a guide for first-time Internet users
Nothing to do with Parkinson's but interesting anyway
BT's "View my Bill" service
This service from BT allows you to view your bill on line.
House of Commons Library Research Papers
Read what your MP gets to read.....
Professional Researcher
Site aimed at professional researchers with lots of useful links to many
different sites.
The Motley Fool UK
Inform, educate and amuse whilst showing you that you are the best person to
manage your money.
UK Speedtrap Bible
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